CHLOE MADISON - A little girl fighting for her life - HAMILTON NEWBORN PHOTOGRAPHER
Jan 1, 2020
Everything about this lifestyle newborn photography session was amazing! This family's home was like something out of a magazine and mom styled the whole family to match!
I met Leanne, Chris, Milena and baby Chloe recently to document their newly formed family of four. Milena, in true toddler fashion, had no interest in being still. Luckily with the nature of lifestyle newborn photography sessions, being still and asking children to pose isn't needed. While mom fed baby Chloe, I followed Milena around and got to play with her to document her silly self in a natural and fun way. From jumping on beds to games of peek-a-boo, we focused on capturing sweet Milena just as she is. After Milena had her chance to be the centre of my attention for a bit she agreed to sit with her baby sister and we captured some of the sweetest moments between her and her baby sister. Milena kissed baby Chloe completely unprompted and gently stroked her hair. It was one of the sweetest things ever to see Milena go from silly and high energy to calm and gentle.
At just a few months old, Chloe was diagnosed with Spinal Muscular Atrophy - A genetic condition that causes muscle weakness. SMA can affect a child's ability to crawl, walk, sit up, and control head movements. Severe SMA can damage the muscles used for breathing and swallowing.
In an instant their world changed. Since Chloe's diagnosis her family has been fighting so hard to save her life. Despite the strides Chloe has made with constant occupational and physical therapy - the best way to ensure Chloe lives a long and healthy life is a treatment called Zoglensma. It is a one time treatment that is readily available in the United States, but for Canadians comes with a price tag of $2.1 million dollars.
In a country where we have access to free healthcare and medical advancements, there are still families like Chloe's who are forced to fight just to get a life-saving medication covered.
My heart breaks for Chloe and her family and all the other families who are fighting the same battle. If you feel there is anything you can do to support Chloe's battle please do so! Whether it be a donation to the Souza family's crowdfunding campaign or simply sharing social media posts to help spread awareness - every little action means so much.
You can find out more about Chloe's journey here, here and here.
Leanne, Chris, Milena and baby Chloe are one of the sweetest families I've ever met and I hope we can all come together to support them xx
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